By Huldah Shado
The Albinism Association of Nigeria (AAN), has renewed calls on the Federal Government and relevant stakeholders to integrate skin cancer screening and treatment into the National Health Insurance Scheme (NHIS), to alleviate the growing health burden on persons with albinism.
Speaking at the International Albinism Awareness Day (IAAD), 2025 celebration in Abuja, Dr. Bisi Bamishe, President of the association, said the appeal was in line with this year’s theme: “Demanding Our Rights: Protect Our Skin, Preserve Our Lives.”
She described the theme as a powerful call to action, stressing that timely policy intervention could save lives and restore hope to the albinism community.
“Harsh environmental conditions and limited access to health services have led to a sharp rise in skin cancer cases among persons with albinism,” she said. “Many are dying needlessly because they cannot afford the cost of treatment. Including skin cancer care in the NHIS will make a life-saving difference.”
Dr. Bamishe also raised concerns about the educational challenges faced by students with albinism, especially due to visual impairments.
She urged the government to fully implement the National Albinism Policy on Education, ensuring the provision of learning aids and inclusive tools to promote quality education.
Highlighting AAN’s progress over the past two years, Dr. Bamishe announced that the association now has active chapters in 26 states, with plans to expand to the remaining 10.
She also noted its formal registration with the Joint National Association of Persons with Disabilities (JONAPWD), the National Commission for Persons with Disabilities (NCPWD), and several government agencies.
In his remarks, Prof. Sam Amadi, Chairman of the AAN Board of Trustees, praised the association’s growing visibility and impact.
He emphasized the importance of unity and sustained advocacy in achieving the association’s mission.
Also speaking at the event, Mr. Kaura Wakili, Chairman of JONAPWD (FCT Chapter), acknowledged the unique challenges confronting persons with albinism and applauded their resilience and commitment to advocacy.
A stakeholder, Mr. Afam Kasim, advised persons with albinism to take proactive steps to protect themselves from harmful ultraviolet rays by using sunscreen and other sun-protection measures to prevent skin cancer.
The IAAD 2025 event drew participation from stakeholders across public and private sectors, as well as state representatives of the AAN from across the federation, united in the call for improved health, education, and inclusion for persons with albinism.